Lithuania supports Acting on Heart Failure European Campaign

The ‘Acting on Heart Failure’ campaign is getting very busy with awareness events in Lithuania!  On the 4th of May, Širdies Nepakankamu Sergančiųjų Asociacija (ŠNSA), a Heart Failure patient advocacy group in Lithuania, will be holding a mobile Cardiology clinic event!  The clinic will offer cardiac screenings to attendees, interactive information on Heart Failure will be provided and attendees will have the opportunity to engage with Heart Failure experts.

As an indication of support for Heart Failure patients, the city of Vilnius will light up the Mindaugas Bridge in the colour red.  In another touching display of solidarity, the city of Kaunas will light up the Christ’s Resurrection Church in red for a week. Have a look at the event flyer and head over to ŠNSA’s Facebook page to get all the details of these important events.

Don’t forget to check back in to this website to see Lithuania’s progress on the ‘Acting on Heart Failure’ campaign, and to see the activities of the other European countries in raising awareness for Heart Failure.

Croí launch Global campaign ‘Acting on Heart Failure’

GALWAY THE FIRST OF 40 EUROPEAN CITIES TO LAUNCH GLOBAL CAMPAIGN ‘ACTING ON HEART FAILURE’

Pictured at the launch of the ‘Acting on Heart Failure Global Awareness Campaign’ in the Croí Heart & Stroke Centre Galway, photo shows (left to right); Annette Irving; Mayor of Galway, Cllr Pearse Flannery; Dr Yvonne Smyth, Consultant Cardiologist; Cllr Eileen Mannion, Mayor County Galway and Neil Johnson, Croí

 

  • ‘Acting on Heart Failure’ is a patient-group led initiative dedicated to increasing global awareness of heart failure Galway is the first city to launch this European campaign
  • Mayors from cities across Europe have united behind the International Heart Hub (ihhub) – of which Croí is a founding member– to help raise awareness of heart failure and call for local action to   improve the lives of those living with the condition.
  • It is estimated that 90,000 people live with the condition in Ireland, and up to 60 million people worldwide

The Mayor of Galway City, Cllr Pearce Flannery and the Mayor of County Galway, Cllr Eileen Mannion, (Friday May 4th) joined forces at the Croí Heart & Stroke Centre to be the first City and County in Europe to launch the ‘Acting on Heart Failure’ global awareness initiative. Galway is one of 40 cities across Europe to participate in this global patient-group led heart failure awareness campaign. The month of May is European Heart Failure Awareness Month, and Mayors from across Europe have united with the International Heart Hub (ihhub www.ihhub.org)  which is a global alliance of heart failure patient organisations to commit to raising awareness of heart failure and call for local action to improve the lives of those living with the condition. The ‘Acting on Heart Failure’ Campaign in Europe is being co-ordinated by local Heart & Stroke charity Croí.

Heart Failure is a specific and serious heart condition which is debilitating and life-threatening, affecting people of all ages but is most prevalent in the over 60’s, being the most frequent cause of hospitalization in people over the age of 65. It is a condition where the heart cannot pump enough blood around the body because the muscle of the heart becomes too weak or too stiff to work properly. If poorly treated it has a worse prognosis than many forms of cancer. However, with access to timely diagnosis, appropriate medical management and follow-up services, a patient’s prognosis can be significantly improved.  Due to Ireland’s ageing population, heart failure is set to increase dramatically, leading to an increase in hospital admissions from heart failure of more than 50% over the next 25 years.

Approximately, 90,000 people in Ireland; 15 million people in Europe and 60 million people worldwide are living with heart failure, many with very poor quality of life due to poor initial recognition of symptoms; poor or late diagnosis; inequity of access to specialist care, including heart failure nurse specialists and low availability of community shared and continued care

Speaking at the launch today in the Croí Heart & Stroke Centre, Croí CEO Neil Johnson said “Croí is delighted to lead this European Initiative. It’s time heart failure patients were heard. We are teaming up with patient organisations across the globe, including the Heartbeat Trust here in Ireland, to join the global newly unified patient voice to call for better services and care. The reason for this European Campaign is that in Ireland and across Europe, Heart Failure has been for too long a forgotten condition in health policy despite its enormous economic impact and the huge burden carried by those living with the condition. Consequently, there are huge challenges which need to be tackled”

The ‘Acting on Heart Failure Campaign’ has 5 key objectives, namely;

  • Improve public understanding of what Heart Failure is – While the term Heart Failure is very negative and can be very scary – early diagnosis & proper management can give a good quality of life
  • Help people recognise the symptoms of Heart Failure – Unfortunately, the typical symptoms are often mistaken as normal signs of aging
  • Help people differentiate Heart Failure from other heart conditions – Less than 5% of the general public know what heart failure is. It is not a heart attack and it’s not a cardiac arrest, and these terms are often used interchangeably without knowing the difference.       In simple terms, a heart attack is a ‘plumbing problem’, cardiac arrest is an ‘electrical problem’ and Heart Failure is a ‘pumping problem
  • Educate people on who can be affected by Heart Failure – People of all ages can develop heart failure, primarily linked to anything that damages the heart muscle eg high blood pressure, heart attack or a virus. Most heart failure is due to heart disease and most frequently occurs in the older years but it’s not just an older person’s disease
  • Provide support to people with Heart Failure – Because HF is largely a chronic disease, those living with it have huge needs for support and understanding and much needs to be done in this area, particularly in terms of psychological support.

Read more on Heart Failure

 

Cities across Europe are supporting the ‘Acting on Heart Failure’ Campaign keep up to date here.

 

The Heartbeat Trust, Ireland takes part in the in the European Campaign ‘Acting on Heart Failure’.

The ‘Acting on Heart Failure’ team at Parsirdi.lv in Latvia will be holding a health screening and awareness event on the 17th of May in Liepāja.

Exciting ‘Acting on Heart Failure’ events on the horizon in Germany! On the 26th of May, Herzschwäche Franken e.V., a Heart Failure support group in Germany, will be leading a Heart Failure Patient Day!  The mayor of Nurnberg will address guests at the event and pledge support for Heart Failure.

Lithuania supports ‘Acting on Heart Failure’ European Campaign – As an indication of support for Heart Failure patients, the city of Vilnius will light up the Mindaugas Bridge in the colour red.

 

 

 

 

2019 FAQ Croí Tour de Lough Corrib

The Tour de Lough Corrib 2019 charity cycle will take place Sunday, June 9th starting from Dangan Sports Pavillion, Dangan, Newcastle, Galway (Google Map https://goo.gl/maps/cw7zsyaTq5T2 )

How should I fundraise?

This is a fundraising event, we ask participants to try and raise at least €100 (minimum €50) to help us continue our vital work in communities throughout the region.

Once your registration has been received, a sponsorship pack will automatically be sent out to you. If you have any queries in relation to this please contact lisa@croi.ie. We also encourage participants to use the following  online platforms to fundraise:

Does everyone get a jersey?

No, as this is a fundraising event, we ask participants to try and raise at least €150 (minimum €50) to help us continue our vital work in communities throughout the region. As always we have some great fundraising incentives:

FUNDRAISING INCENTIVES

€50+ We ask that all participants raise or donate a minimum of €50 to ride in the Tour de Lough Corrib Cycle. 100% goes to supporting our lifesaving work. Reach this fundraising milestone and you will also receive an exclusive Tour De Lough Corrib finishers t-shirt.

€150+ Reach this fundraising milestone and you will be rewarded with a limited edition 2019 Tour de Lough Corrib cycling jersey and finishers t-shirt and you will be entered into a draw to win a fantastic Bike Package to the value of €1,000.

What time does Registration start?

Registration opens at 7.10am at Dangan Sports Pavilion, Newcastle, Galway (https://goo.gl/maps/cw7zsyaTq5T2). At registration you will receive your event ID badge, you NEED this to get access to the food stations and road support. If you raise €150+ you will also get your jersey.

When do I get my jersey?

Jersey’s can be collected on the morning of the cycle at Dangan Sports Pavilion (start area).

When do I bring my sponsorship?

At registration, please bring your sponsorship money to the registration desk on the morning of the cycle.

How much do I need to raise?

This is a fundraising event, we ask participants to try and raise at least €100 (minimum €50) to help us continue our vital work in communities throughout the region.

Can I get a refund?

There are no refunds, all sponsorship is viewed as a charitable donation.

Will there be bike repair on the routes?

Please ensure your bike is checked before departure, pump your wheels and ensure you have spare tubes for your wheels. Bike mechanics are available on the routes.

What time does the cycle start at?

Please leave plenty of time to get to the event sign on as there will be a lot of traffic in the area. Registration opens at 7.10am.

Where can I park my car?

There will be adequate parking in place at the start line – Dangan Sports Pavilion, please allow extra time to get parking and event registration. It will be busy. Please do not park illegally. Please respect the residents of Newcastle and commercial premises in the area.

45KM Route Map
Starting at the NUIG Regional Sports Pavilion in Dangan, all riders will turn left onto the N59 and ride along Newcastle Road. At the Traffic lights, turn left onto the Quincentennial Bridge and follow the signs to Headford. The Route then follows onto Headford. Riders will turn at Headford and back to finish at Croí Heart and Stroke Centre. 45KM google map. 

80KM Route Map
Starting at the NUIG Regional Sports Pavilion in Dangan, all riders will turn left onto the N59 and ride along Newcastle Road. At the Traffic Lights, turn left onto the Quincentennial Bridge and follow the signs to Headford. The Route then follows through Headford, onto Cong. Riders will turn at Cong and back to finish at Croí Heart and Stroke Centre. 80KM google map.

120KM Route Map

Starting at the NUIG Regional Sports Pavilion in Dangan, all riders will turn left onto the N59 and ride along Newcastle Road. At the Traffic Lights, turn left onto the Quincentennial Bridge and follow the signs to Headford. The Route then follows through Headford, onto Cong, Maam, Maam Cross, Oughterard, Moycullen and will finish at the Croí Heart & Stroke. 120KM google map.

Where are the refreshment stops?

120km refreshment stops:

  1. Headford (outside Joyces Hardware)
  2. Cong (outside petrol station)
  3. Maam Community Centre
  4. Oughterard (Roadside by Cemetery)
  5. Home to Croí House

80km  refreshment stops

  1. Headford (outside Joyces Hardware)
  2. Cong (outside petrol station)
  3. Headford (past the village of Headford on the left hand side – community centre)
  4. Home to Croí House

45km refreshment stops

  1. Headford (outside Joyces Hardware)
  2. Home to Croí House

We recommend you also bring also your own supply of cycling gels, bars and drinks.

Do rules of the road apply?

YES.  This event is not a closed road event and you must adhere to the normal rules of the road.

  • Cycling on the route is maximum of two a breast.
  • The event is not a race and you are responsible for your own safety and the safety of others on the road.
  • Croí directional signs will be placed throughout the route and marshals will be evident throughout the route. Please remember marshals are only there to assist. You must check for oncoming traffic at all junctions.
  • All participants will be provided with an emergency contact number in the case of an emergency on the route. Please note this is not a number for bike repairs.
  • Please ensure you have spare tubes in the event of a puncture and do not rely on the emergency number for help with changing punctures etc.
  • No earphones permitted

What happens after the event?

After the event, we will welcome you back to Croí House where you can rest and enjoy our famous race hospitality – home baked goodies, tea, coffee and sandwiches!

Are there showers at the finish line?

No showers available.

Are there toilets on the routes.

No additional toilets on route, there will be plenty of petrol stations en route and you can ask to use their facilities. There are toilets at Cong, Maam.

What if I need first aid?

Irish Red Cross ambulances will be on all routes. Should you require assistance please call emergency number on your final confirmation email. In case of an emergency dial 999 for ambulance and then call emergency event number.

Are the routes well sign-posted?

Yes, there will be Croí directional signage on all routes, including marshals to support you. Remember rules of the road apply.

Do I need to bring anything with me?

Yes, bring the following:

  • Helmet
  • Water bottle(s)
  • Puncture repair kit and spare tubes
  • Mobile Phone with credit
  • Snacks
  • Sunblock
  • Rain jacket
  • Emergency money and ID

Is the jersey unisex?

Yes, and typically the jerseys are tight fitting.

Can you recommend accommodation in Galway for the event?

There is lots of accommodation available in Galway – Corrib Village is close to the start/finish line check it out here – Corrib Village NUIG

Anything else?

Yes, please respect the volunteers, marshals and medics on the route they are there for your safety. Please bring rubbish with you to the next refreshment stop if snacking on the route.

Enjoy the ride!

For any additional information please contact Christine  on 091 544062 or email christine@croi.ie

Week 1: Tour de Lough Corrib Cycling Tips for the weekend

Welcome to Tour de Lough Corrib Cycling Tips for the weekend!

The countdown is on with less than one month to go until the 23rd annual Tour de Lough Corrib charity cycle in aid of Croi. For the next four weeks we’re going to share some cycling tips to help you get prepped for Sunday 4th June.

As they say “safety first!” – Week 1’s cycling tips is all about safety. .Your safety is most important, so be sure practice safety at all times when on your bike!

1. Wear a Helmet

This is absolutely essential. Wearing a helmet can save your life in an accident. So whether you’re new to cycling or a professional, anything can happen so ensure you’re protected. Ensure your helmet is of good quality, the correct size and fastened properly when riding.

NOTE: All cyclists participating in the Tour de Lough Corrib cycle must be wearing a helmet to be permitted to join the event.

2. Check your Bike

Before setting off on a long cycle it’s important to give your bike a once over. Your brakes are vitally important so be sure to test them and ensure they’re in working order. Check your tires for air and look out for possible punctures and finally test your gears to ensure they’re also working correctly.

Finally if you’re new to cycling it’s vital to have your bike correctly set up, so be sure your saddle, handle bars and frame are suitable for your size. This will make a significant difference and make cycling must easier on long distances.

NOTE: We recommend that all cyclist participating in the Tour de Lough Corrib cycle have their bike serviced before taking part in the event.

3. Stay Hydrated

When setting out on a long cycle it’s important you have plenty of H2O with you. Bring a bottle of water with you so you’re never left short. There will be refreshment stops along the Tour de Lough Corrib route so you’ll have an opportunity to fill up your bottle at these stops.

If you have any questions relating to Tour de Lough Corrib cycle please join us on Facebook to keep up to date or email Edwina@Croi.ie

The 23rd annual Tour de Lough Corrib takes place Sunday 10th June 2018. Register HERE.

 

 

 

Our 2018 cycle jersey!!