Stroke Support Group Summer Outing

Day tripping along the Wild Atlantic Way – the best medicine!

By Annie Costelloe, Croí Health Programmes Coordinator

‘Breathe deeply of the sea air as you enter Rosmuc!’ Peter O’Malley proclaimed as Donoghue’s Bus rolled into Pearses Cultural Centre in Rosmuc, ‘There is nothing like it anywhere in the world’ beamed the proud Connemara man!

And he was right, we were on the Croí Stroke Support Group Summer Outing 2018, it was a stunning  day in the month of June, the sun shone brightly as we took his advice.  You can take the man out of Connemara but you can’t take Connemara out of the man! Peter knew every bump and hillock, he knew who owned every house and piece of land along the road from Maam Cross to Rosmuc and regaled us with stories to match, of weddings and wakes from bygone days and in between gave us a few bars of his favourite tunes as Gaeilge!

 

The Stroke Support Group summer outing has been a constant in the Croí calendar for many years now, recently the group have visited the Cliffs of Moher and the Museum of Country Life in Castlebar.  This year they opted for Pearse Cottage, now the Pearse Cultural Centre (Ionad Cultúrtha an Phiarsaigh)  located in Ros Muc, in the heart of the Connemara Gaeltacht, on the Wild Atlantic Way. The Visitor Centre houses a fascinating interactive exhibition dealing with Pearse’s legacy and exploring the things that drew Pearse to Connemara: the area’s unique landscape and history, and the ancient Gaelic culture and language which is still alive in the area today. The building itself is truly a 21st century structure but respectful of its location and the landscape in which it resides. Inside we were treated to a mouth-watering array of pastries and cakes and the welcome aroma of freshly brewed tea and coffee provided by Martin and his staff in the café @maiziegourmet.  After we had enjoyed our repast, the group took some time to take in the interactive exhibition at the centre before taking a short stroll through the bog path to visit Pearse’s Cottage, which is just as he left it in 1915.

Then it was back onto the bus and off to the Coral Strand (Trá an Dóilín ) one of Connemara’s finest blue flag beaches. Sitting at the mouth Galway Bay, the strand is a series of small coves nestled between rocky outcrops. We eagerly hopped off the bus, pulled off our shoes and socks and spent a very enjoyable hour walking along the water’s edge, breathing in the Connemara air that Peter spoke of so highly.  Our very patient bus driver Joe eventually indicated that we had better get going if we were going to be in time for  lunch at the Connemara Coast Hotel!  Peter and Gerry led the sing song on the way to Furbo where we were warmly greeted by the staff at the Connemara Coast Hotel (@connmearacoast) and  served a scrumptious lunch with all the trimmings as we sat back and enjoyed the vista from the dining room and the serenity of the Wild Atlantic Way. Nessa Heaney captured the sentiment of the day as she toasted ‘good friends, camaraderie and beautiful Connemara…. the best medicine’

  

“It is the the little things that make a big impression and the Croí Stroke Support Group would like to say a big thank you to all who paid such attention to detail in ensuring that the group got maximum enjoyment from the day. Some of us do not move as quickly as we would like any more and living a life after stroke can mean that things take a little longer to do and in that regard Joe, our driver, at Donoghue’s Bus, deserves special mention,  he  is truly a gem, he was so kind and caring to the group.  Thank you also to Dáire and Martin and the staff at Pearses Cultural Centre and Café and to the staff and management at the Connemara Coast Hotel who looked after us a so very well.”
– Feedback from a member of the Croí Stroke Support Group.

 

The Croí Stroke Support Group meet at Croí House on the second Thursday of every month and new members are always warmly welcomed, call Jessica on 091 544310 for further information. 

2018 World Stroke Day

In recognition of 2018 World Stroke Day, we held a lovely tea party for our Stroke Yoga participants, Stroke Support Group and Stroke Communication Group. Thank you to everyone who attended and shared words of advice to help other survivors get #UpAgainAfterStroke.

Monica, a member of the Croí Stroke Support Group.

Monica’s husband Pat suffered a stroke on April Fool’s Day, 2014. “He has plenty jokes about that,” says Monica of her husband of 48 years.

“It was very difficult in the beginning after the stroke, but Pat was so determined. He had such a good attitude, but often took risks and that scared me. I was trying to keep him safe, but he was so used to his independence.”

Pat was told he wouldn’t be able to walk after the stroke, but following relentless therapy sessions, Pat got back on his feet and is doing really well. “While he was hospitalised, I would go for my daily visit after his physiotherapy session, and discover he had gone for a second session, sometimes a third!” says Monica.

Monica and Pat are members of the Croí Stroke Support Group, who meet every month at Croí House to chat and offer support to one another. “The group meetings are fantastic for both of us, for different reasons. Pat connects with other stroke survivors, learns from them, and offers advice from his experience. As well as the group meetings, Croí also arrange support meetings for the carers, or loved ones of stroke survivors, where we can chat about difficulties we encounter without upsetting our loved ones. The whole group also have different get-togethers outside of Croí, such as coffee mornings, craft sessions, knitting, etc., the main purpose being to chat… about anything other than stroke!” says Monica.

I meet with fellow stroke carers and we chat, knit or go for coffee, and Pat connects with other stroke survivors to learn from them and offer advice.”

Pat and Monica also took part in Croí programmes, including Croí MyAction, an intensive programme focused on healthy lifestyle changes. “We did everything together, and I found the programmes really helped me too! I needed to be well to be able to help him,” says Monica.

Pat and Monica’s words of advice for #WorldStrokeDay are that there is life after stroke. Every stroke is different, but it’s amazing what goals can be reached. Try reaching the best according to yourself to get #UpAgainAfterStroke.

Paddy, practicing yoga at Croí House.

Paddy suffered a stroke three and a half years ago, and since then has been very involved with the work and activities at Croí House. “It really changed my life. I come to Croí every Wednesday for the stroke survivor’s yoga class, and then every month for the support group. I can link with people who understand, and I feel comfortable in their company,” says Paddy.

Paddy’s recovery from stroke was not smooth. One year after his stroke, Paddy ended up in intensive care after an operation to remove a cancerous tumour. The operation almost re-activated his previous stroke symptoms and Paddy had to relearn how to walk again. “I worked hard to get back to where I am today. My mission is that I can walk into a room and no one would ever know I’ve had a stroke.”

Paddy is a regular at the Croí stroke yoga sessions, where Vicky Harkin volunteers her time as the stroke yoga instructor. “Vicky was born for this job. She’s the most enthusiastic person.” Vicky’s stroke survivor yoga classes are very popular and numbers have grown to over 30 per class.

Paddy’s words of wisdom for #WorldStrokeDay are to get involved with a network, like the Croí Stroke Support Group. There are facilities available. Even activities like going to the library or for a walk are forms of self-therapy. Get out and meet people – it will help you get #UpAgainAfterStroke.

  • Gerry, a stroke survivor from Co. Clare: “A positive attitude, watch your diet and regular exercise will help you get #UpAgainAfterStroke. Croí has been a great support for me and my family. ”
  • Christina, a stroke survivor from Galway: “Keep positive, keep busy and stay motivated. Plenty of physio / hydrotherapy and yoga will help you get #UpAgainAfterStroke. I found Croí’s neck exercises and meditation very good.”
  • Margaret, a stroke survivor: “Yoga and exercise classed will help you get #UpAgainAfterStroke.”
  • Frank, a stroke survivor from Galway: “Keep active if you can. Croí is a great facility. It helped me with yoga and having human contact helped with my recovery. Support is always needed.”
  • Delia, a stroke survivor from Mayo: “Plan your day with goals. Exercise and rest is so important. Croí has helped me physically, mentally and socially. I look forward to having more services in Ballinrobe, Mayo.”
  • Brian, a stroke survivor from Galway: “Do what you are told from the start. Croí yoga classes helped me get #UpAgainAfterStroke.”
  • Gwen, a stroke survivor from Galway: “Keep going. Croí has been just wonderful for my recovery.”
  • Eithne, a stroke survivor from Galway: “Get up, get dressed and go out.”
  • Andy, a stroke survivor from Galway: “Get up and
    about and be social. Croí’s exercise and yoga classes
    helped me get #UpAgainAfterStroke.”

Thank you everyone who shared their story for World Stroke Day.

The Croí Stroke Support Group meet at Croí House on the second Thursday of every month and new members are always warmly welcomed. Please call Jessica on 091 544310 for further information.

Night runners light up the Prom for Croí

The 4th Annual Croí 5km Night Run took place on Friday last, October 19 along the Salthill Prom in Galway. Over 1,300 runners and walkers donned their bright orange t-shirts and came out in support of Croí’s Night Run, the Heart and Stroke Charity’s largest fundraising event of the year. Over €60,000 was raised, with 100% of the proceeds going directly to support the work of Croí. This has been made possible thanks to the continued sponsorship of Evergreen Healthfoods.

Special guests on the night included Galway Rose, Deirdre O’Sullivan. The race was chip-timed and participants can check out their race time at croi.ie/nightrun. Photos from the event are posted to Croí’s Facebook page @croiheartstroke.

“What a fantastic turnout this year! We’re so grateful to all our participants, volunteers and our generous sponsor Evergreen Healthfoods for making this our biggest year yet. Every euro raised will go directly to supporting the work at Croí and the fight against heart disease and stroke,” says Neil Johnson, CEO, Croí.

Stay tuned for 2019! Next year will be extra special to mark the 5th Annual Croí Night Run. Croí are working on a commemorative high-vis jacket for participants. “Stay tuned for the 2019 Night Run as we’re planning something even bigger and better for our 5th year,” says Johnson.

Croí’s aim is to lead the fight against heart disease and stroke, with a particular focus on the West of Ireland. See croi.ie for more information and follow Croí on Facebook, Twitter and Instagram @croiheartstroke.

Stand Up to Heart Failure project wins Irish Health Care Award

Stand Up to Heart Failure, a campaign supported by Croí, Heartbeat Trust, Irish Heart Foundation, Novartis and Edelman, won the Patient Education Project of the Year – Pharmaceutical award on October 18 at the 2018 Irish Healthcare Awards.

The Stand Up to Heart Failure campaign aims to raise awareness of the red flag symptoms of heart failure. These symptoms include; fatigue; shortness of breath, especially with activity or lying flat; swollen feet or ankles. Common risk factors of heart failure to be aware of are; high blood pressure, previous heart attack(s), and diabetes.

Campaign ambassador Michael Lyster opened up about his own experience with heart failure at the campaign launch: “Croke Park is one of the biggest stadiums in Europe, with an impressive match day capacity of 82,300. But if everyone in Ireland living with heart failure was invited to Croke Park for the All Ireland final, we would have to build an extra stand as there are 90,000 people living with this chronic condition, and they certainly wouldn’t be standing in the Hill for the duration of a 70-minute game.”

Read more and watch the campaign video here.

Embracing innovation and the power of positive ageing

By Neil Johnson, Chief Executive of Croí, the West of Ireland Cardiac & Stroke Foundation and the National Institute for Preventive Cardiology

In September, I chaired a European Parliament roundtable with MEPs and five other cardiac patient organisations on Heart Valve Disease and the Power of Positive Ageing.

Our message was simple – heart valve disease is a barrier to active and healthy ageing: early detection, diagnosis and treatment with innovative medical technologies enables positive ageing. Equal access to these technologies was at the core of our discussion.

Heart valve disease is a common and blameless disease of ageing. Around 13% of people aged over-75 have some form of the disease. It is both life-limiting and potentially life-threatening; 50% of people with severe aortic stenosis, the most common form of the disease, will die within 2 years if not appropriately treated.

Yet, it does not have to be like this. Surgical heart valve repair or replacement are proven treatments and we are now living through a period of exciting and impressive advances in treating the disease with minimally invasive and keyhole techniques.

Repairing or replacing a diseased valve can, in effect, cure the condition. Blood will once again flow through the heart the way in which nature designed it and patients can anticipate a better and longer quality of life.

This is where the Power of Positive Ageing comes in. The ageing demographics of Europe are frequently viewed as a negative thing, whereas we believe and know that healthy older people contribute significantly and in very positive ways to our families, communities and economies.

After all, we know that many people over the age of 65 care for their partners or look after grandchildren so that their own children can go to work.  In the UK, Age UK estimates that this care is worth £15bn to the country’s economy.

Here in Ireland, our senior population are literally running our communities by volunteering.  The Healthy and Positive Ageing Initiative (HAPAI) announced recently that 12% of over-70s volunteer in their communities weekly, while a further 19% volunteer at least monthly.  Similarly, in France 36% of those over 65 volunteer in an association according to a report from Bénévolat.

Economically, older people actually play a key role. According to Spain’s Centre for Sociological Research (CIS), 37.7% of people believe that one of the greatest contributions of grandparents to Spanish society is to help their families ’economically’, while over 25% of people recognize and highlight their role in ’keeping the family together’

For me, it is self-evident that keeping our elderly population in good heart health with innovative medical technology is one clear solution to the challenges we face across Europe. Ensuring that patients have access to these technologies is central to this solution, but unfortunately, access varies widely across Europe. For example, in Denmark, Austria and Switzerland, you are much more likely to be treated with innovative technologies than in my own country.

This is why a European alliance of heart patient organisations have called for action from European healthcare systems to ensure that patients have equal access to effective heart valve disease treatment wherever they live.  Achieving this will allow us all to embrace the benefits of the Power of Positive Ageing.

————————————————————–

Originally posted by MedTech Europe on October 11, 2018.

County Galway Social Inclusion Week (15 – 21 October 2018)

Social Inclusion Week for County Galway is taking place from the 15th -21st October, 2018.

Croí is delighted to be involved with several events throughout the County. On Tuesday, Oct. 16, Croí will be at the Positive Parent Seminar in the Family Centre, Tuam, for free health screenings from 9.30am- 12.30pm. On Wednesday, Oct. 17, Croí will present a Health and Wellbeing Day from 10.30am–12.30pm at Ellis Hall, Letterfrack.

The purpose of the week is to increase awareness and understanding of inclusion and diversity in County Galway. It also aims to show how community activities contribute towards Health and Wellbeing.

See the full list of events here. Social Inclusion Week for Galway County is organised by Galway County Council.

Yeats College Bake Sale

A huge thank you to the 5th year students at Yeats College, Galway, who organised a lovely bake sale on October 5 in support of Croí services! Over €350 was raised through the bake sale and coffee morning. Thank you to all the students, staff and parents who contributed and helped out on the day.

 

 

 

 

 

 

 

 

 

 

 

Are you interested in organising an event in support of Croí? Learn more here – https://croi.ie/organise-a-fundraiser/

Croí Galway Night Run – FAQ’s

Date: Friday, October 9, 2020
Location: Virtual Event – take part on your local route!
Time:
Take part at any time during the day or night

Frequently Asked Questions

1. How much is it to enter this year’s Virtual Night Run?

  • Regular entry is €25, and for youths (12 yrs – 18 yrs) it is €15.
    Under 12s are FREE (No t-shirt incl.)

2. How do I register to take part?

  • You can register to take part and support Croí by going to croi.ie/nightrun
    Registration is open until Friday, October 9th.

3. Where does this year’s Night Run take place?

  • This year’s event is virtual, so you can take part in your local area and run, jog or walk a 5K (respecting safety and social distancing guidelines).

4. Can I take part at any time on October 9th?

  • Yes, participants can take part at any time on the 9th of October, day or night.

5. How do I pick up my pack?  What if I live outside of Galway?

  • Race packs can be collected at Croí House the week of the event.  The pack pick up times are from:
    • Monday (Oct 5) and Tuesday (Oct 6)  9:30am – 6:00pm
    • Wednesday (Oct 7) and Thursday (Oct 8) 9:30am – 8:00pm
    • Friday (Oct 9) 9:00am – 4:00pm

    Social distancing guidelines will be implemented.

For those living outside Co. Galway, packs will be posted out to you prior to the event.

**We have been overwhelmed by the response to the Virtual Night Run, which exceeded our expectations! Due to this unprecedented high demand, for those registered after 1st October, we will not have your packs available before next Friday, 9th October. Please be assured that we will post it to you in November, once the new order arrives. Thank you for your understanding and thank you for your support!**

6. Will there be medals this year? 

  • As the event is virtual and we are unable to present medals at our usual post-event celebration, there will not be physical medals this year. However, all participants will receive a virtual medal. We have reduced the entry fee to reflect this change.

7. Do you have a size guide for the running tops?

  • The running top is unisex and true to size:
    • XS: 6-8
    • S: 8-10
    • M: 10-12
    • L: 12-14
    • XL: 14-16

8. Virtual entertainment – iRadio playlist:

  • This year, we are delighted to announce that our Night Run media partner, iRadio, is creating a music playlist to keep you entertained and motivated while you enjoy your Virtual 5k Night Run experience. We will be emailing a link to all registrants soon.

9. What are the guidelines around social distancing while taking part?

  • Gatherings and events outdoors should be a maximum of 15 people, and you should keep 2 metres apart from people you don’t live with. For more information please visit the HSE website.

10. What are the guidelines and recommendations around using a light and wearing high-vis if taking part at night?

  • If you are taking part at night or in the evening, ensure that you wear reflective or brightly coloured clothing, especially if there is no footpath where you plan on running/walking. You should always go against traffic. For more information visit the Road Safety Authority’s website.

11. How do I share images of my participation in this year’s virtual Night Run?

  • We would love you to share your photos and videos with us on social media, such as Facebook, Instagram and Twitter. Make sure to tag Croí in your photos/videos using: @Croiheartstroke. Remember to also use the Night Run hashtag: #CroiNightRun.

12. How should I prepare for the 5k Night Run?

  • We are here to support you on your Night Run journey and have developed Night Run Training Programmes for both running and walking goals. More details on this here: croi.ie/nightruntraining 

13. Can I register as part of a team?

  • Yes, we always welcome teams to participate in our 5k Night Run, whether it is a corporate team building exercise, a family, a sports club, or a social group. For more information on this please contact Christine at christine@croi.ie.

14. Is the Night Run chip timed this year?

  • The event this year is not chip timed, however there are a number of great, free apps that you can use to track your run, jog or walk, from basic pedometers to Runkeeper or Strava. Check out the app store to download the most suitable one for you!

15. Can I raise additional funds for Croí while taking part in the Night Run?

  • Of course, we are grateful for any additional support! If you are interested in setting up a fundraising page please visit our iDonate page.  For team fundraising, contact christine@croi.ie.

Have a different question? Contact us on Facebook or by emailing christine@croi.ie.