Heart & Stroke Voice Ireland
About us
Heart & Stroke Voice Ireland (HSVI) was founded in 2022 and is a patient/survivor and carer led alliance of those living with or affected by heart conditions and stroke in Ireland. It has formed under the auspices of Croí (www.croi.ie) to provide a platform for the patient and carer voice and also to inform and support Croí’s national heart and stroke advocacy agenda under one of its key pillars of Advocacy and Empowerment.
The importance of an informed and empowered patient/survivor in self-care and self-management and its contribution to improved outcomes is well established. Equally the voice of lived experience is critically important to understanding the patient and carer journey and identifying unmet needs. Despite the scale and burden of cardiovascular diseases in Ireland, the voice of those affected or living with heart conditions has to-date been largely unorganised or disconnected. This is in sharp contrast to many other disease areas. Heart & Stroke Patient Voice aims to unite and develop this community and put the patient/survivor at the centre of their healthcare.
The key aims of HSVI are to connect and unite heart patients and stroke survivors; to highlight unmet patient/citizen needs in the area of heart health and stroke prevention & recovery; to provide a platform to develop the capacity and capability of the patient voice so that patients are recognised as equal stakeholders in their healthcare and to promote greater awareness and understanding of the need for equitable and timely access to quality treatment and care across the care journey.
The latest from Heart & Stroke Voice Ireland
Heart & Stroke Voice Ireland, is an initiative of Croí, the West of Ireland Cardiac and Stroke Foundation. Croí is a company limited by guarantee and a registered charity (Registered Charity Number (RCN): 20016616.
As Heart & Stroke Voice Ireland has formed under the auspices of Croí, it’s governance is fully aligned with and falls under the governance of Croí. Croí is governed by a voluntary Board of Directors who meet regularly to oversee the work of the organisation. All directors give freely of their time and expertise in an unpaid voluntary capacity. The Board is comprised of directors from varied backgrounds, with expertise in among others, business, finance, management, medicine and law. Directors are appointed for a fixed term and their names are listed in the Croí annual audited accounts, annual report and on the Croí website https://croi.ie/
Croí has adopted and adheres to both the Statement of Guiding Principles for Fundraising and the Governance Code for charities in Ireland.
Croí provides secretariat support to HSV Ireland, which includes the management of day-to-day operations, coordinating meeting and events, providing administrative support, preparing reports and documents, finance management, and stakeholder liaison on behalf of the alliance. Croí’s Head of Patient and Community Engagement serves as the central point of contact and is responsible for ensuring that HSV Ireland operates effectively and efficiently.
Heart & Stroke Voice Ireland, respects privacy and is committed to ensuring that any personal information or data shared with it is collected legally and held securely and safely.
Mission
Our mission is to ensure the best possible outcomes for people living with or affected by heart conditions and stroke in Ireland by creating a community that advocates for, supports and empowers patients/survivors and their caregivers.
Vision
Our vision is to be the leading voice for the needs of those living with or affected by heart conditions and stroke in Ireland by ensuring that they are equal stakeholders in their healthcare.
A Welcome Message from our Chairperson
A Welcome Message from Croí's Head of Patient & Community Engagement
Advocacy - The Patient Voice to Patient Leadership
Use your Voice for Change
Goals
to
UNDERSTAND
to
EMPOWER
to
STRENGTHEN
to
ADVOCATE
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