International Heart Valve Disease Awareness Week – Croí to Host “Listen to Your Heart” Webinar

“It’s been described as the next cardiac epidemic…”

With One in Eight Over 75 Years Suffering from Heart Valve Disease, People Urged to Have an Annual Stethoscope Check

See croi.ie/valveweek for information on heart valve disease and to register for the upcoming webinar.

Croí, the Irish heart and stroke charity, is calling on all adults over the age of 65 years to ask their doctor for an annual stethoscope check to ensure early detection and timely treatment of heart valve disease.

Heart valve disease – where valves in the heart are damaged or not working properly – is common, serious, but treatable. Regular checks for a heart murmur using a stethoscope are a vital tool in diagnosing the disease.

The call comes ahead of International Heart Valve Disease Awareness Week (September 13-19), an initiative of the Global Heart Hub, an international alliance of heart patient organisations from around the world, and which is led in Ireland by Croí.

Statistics show that one in eight people (13 per cent) over the age of 75 are thought to suffer from moderate to severe heart valve disease which can lead to premature death if left untreated.

Marking the week, Croí is to host a webinar on heart valve disease for members of the public on Thursday, September 16 from 7-8pm.

The “Listen to Your Heart” webinar will feature contributions from interventional cardiologist, Dr Samer Arnous, and a person living with heart valve disease. The webinar will highlight the signs and symptoms of heart valve disease and how it is detected and treated. Members of the public will have the opportunity to put their questions to Dr Arnous. People interested in registering for the webinar can do so at www.croi.ie/valveweek.

Needs to Change

For Neil Johnson, CEO of Croí, an annual stethoscope check needs to become a matter of routine for everyone over 65 years:
“As more and more of us live longer, heart valve disease is increasingly an issue that we may need to face. Indeed, it’s been described as the next cardiac epidemic. Sometimes we may put down to old age not being able to do certain things as well as we used to. However, the symptoms of heart valve disease can be masked by the natural signs of ageing. Too often, it goes unnoticed and undiagnosed as we don’t realise that there may be something more troubling going on.

“As we age, especially from 65 years onwards, if you are finding that small everyday tasks like going up the stairs, mowing the grass, or catching a bus, are leaving you feeling breathless or dizzy, you may need to get checked out by your GP. Indeed, as symptoms are not always present, as a matter of good heart health routine, I would encourage anyone over 65 years to have an annual stethoscope check. Unfortunately, we know from research that most people over 65 years in Ireland are not having regular stethoscope checks when they attend their GP. That needs to change. When it comes to heart valve disease, early detection and timely treatment is vital not only in living a longer life, but a life which you can enjoy to the full.”

Heart Valve Disease – Your Questions Answered

  1. What is heart valve disease? There are four valves in the heart – the pulmonary valve, the tricuspid valve, the mitral valve and the aortic valve – and these valves regulate blood flow. Heart valve disease occurs when these valves become damaged, narrowed or stiffened, effecting blood flow in the heart.
  2. How serious is it? Heart valve disease can cause heart rhythm problems, heart failure, blood clots, stroke and even death. Up to half of symptomatic patients with severe aortic stenosis – where the aortic valve is damaged or stiffened – die within two years of developing symptoms if not treated.1, 2
  3. What causes it? There are different reasons as to why heart valve disease might arise. Some people are born with a heart abnormality or it may be due to ageing. It can be the result of a previous infection, such as rheumatic fever or endocarditis. It can also arise due to coronary heart disease or a heart attack, or due to cardiomyopathy, a disease of the heart muscle.
  4. How common is it? 13% of people over the age of 75 are thought to be living with heart valve disease3, and, based on studies in other populations, that number is estimated to double by 2040 and triple by 20604 due to the ageing population.
  5. What are the symptoms? Symptoms can include chest tightness or pain, shortness of breath, irregular heartbeats, dizziness, fainting, swelling of the ankles and feet, fatigue and reduced physical activity. However, some people with heart valve disease will experience no symptoms for many years.
  6. How do you check for it? Everyone over the age of 65 years should have their heart listened to with a stethoscope at least once a year. Anyone with suspected heart valve disease should be referred for an echocardiogram to confirm the diagnosis.
  7. How is it treated? Lifestyle changes and medicines are often prescribed to treat symptoms. However, people may need to have a heart procedure to repair or replace the valve.

For more information on International Heart Valve Disease Awareness Week, visit www.croi.ie/valveweek. To keep up-to-date on developments for Heart Valve Disease Awareness Week in Ireland, follow Croí on Facebook, Twitter and Instagram @croiheartstroke, or search for the hashtags #ListenToYourHeart #ValveWeek21.

Heart Valve Disease Week at Croí!

It was a busy time for Croí this European Heart Valve Disease Awareness Week!

Team Croí were out and about in the West of Ireland with our Heart Valve Disease stand, conducting surveys on heart valve disease awareness amongst the public and providing information on the risks, diagnosis and treatment of heart valve disease. Over 300 surveys were collected which will go on to inform our work and awareness of heart valve disease in Ireland. We also identified several new and engaged patients who will join our heart valve disease patient advocates.

The burden of heart valve disease is rising as a consequence of our ageing population and increased life expectancy. About 1 in 40 adults in the general population are affected and this rises to over 1 in 10 in those over the age of 75 years. This means that heart valve disease is as common as heart failure, yet this is not widely appreciated. The goal of European Heart Valve Disease Awareness Week is to raise awareness on the prominence of heart valve disease and to encourage people to get checked for symptoms of it.

Visit Croí’s information page to learn more about heart valve disease.

The Story Of My Heart

By Pearl O’Kennedy

Pearl is 80 years old and lives with her husband on Rahoon Road in Galway. They have six children and 12 grandchildren.

“10 years ago, following a visit to my GP, I was diagnosed with a murmur in my heart. As it wasn’t causing any problems, I was kept under supervision. For the next few years, my heart was checked every six months, then every three months – during which time I had started to feel a little breathless.

One day, last October, I was going to have an angiogram. When the procedure was over, the doctor sat me down and told me that I needed to have a valve replaced in my heart – the aortic valve. I was sent for a scan the following week to determine if I would have to undergo open-heart surgery. When I met with my doctor to get more tests done, he explained that he had been working on a new type of valve. After showing me diagrams of the valves and explaining how they work – as well as the potential complications – he asked if I would be prepared to let him use one on me. He told me that this would be the first time this particular valve would be used in Europe. After some hesitation, I agreed to let him use the new valve.

A month later, I had the valve replaced. It was a transcatheter aortic valve replacement (TAVI) and I was conscious throughout it all. The procedure lasted for a little over two hours, during which time a nurse stayed beside my head. When it was over, I was transferred to a warm bed and given some medication to help me sleep. When I woke up, I was back in the Cardiac Ward. I felt good and was discharged three days later.

I got home before Christmas and had a lovely time. However, I did notice my hearing had started to deteriorate. Following a visit to the doctor, I was told that I had lost 50% of my hearing. After having hearing aids ordered for me, I learned that hearing loss is something that can happen a person if they’ve had work done on their heart.

Earlier this year, I received a letter from Galway University Hospital asking me to attend an eight-week cardiac rehabilitation programme in Merlin Hospital. This entailed going to the Cardiac Unit two days a week where we did light workouts such as cycling, rowing, walking, and weight lifting. We were also given talks on diet and other general health topics. There were six men and two women in attendance and I was surprised to see some very young men there. When the eight weeks were over, I started to go back to my own gym. Now, I go twice a week. I spend half an hour on the machines and forty-five minutes doing water-aerobics. Life is good now and although I’m still coming to terms with having to use hearing aids, they are becoming part of my life.

Thank God, my heart is good.”

Pearl

Pearl O'Kennedy

Croí is taking part in European Heart Valve Disease Awareness Week (September 16 – 22, 2019), which aims to raise awareness and improve diagnosis, treatment and management of heart valve disease in Europe. #HeartValveWeek19 See www.heartvalvecouncil.org/heart-valve-week for more information.

Heart Valve Disease Awareness Week

Heart valve disease is becoming more common as a consequence of our ageing population and increased life expectancy. About 1 in 40 adults in the general population are affected and this rises to over 1 in 10 in those over the age of 75 years. This means that heart valve disease is as common as heart failure, yet this is not widely appreciated.

From September 16th – 22nd 2019, Croí will be taking part in European Heart Valve Disease Awareness Week. This week aims to raise awareness and improve the diagnosis, treatment and management of heart valve disease in Europe.

#HeartValveWeek19

Heart Valve Week events:

Our ‘Street doc’ will be out in the West of Ireland for #HeartValveWeek19 with an information booth on heart valve disease! Come say hello and learn more about heart valve disease at the following locations:

    • Monday, September 16th from 11 – 3pm: Eyre Square Centre, Galway
    • Tuesday, September 17th from 11 – 3pm: Supervalu, Castlebar
    • Wednesday, September 18th from 11 – 3pm: Molloys Pharmacy Harrisson Centre, Roscommon
    • Friday, September 20th from 11 – 3pm, Ballinasloe Credit Union, Galway

 

To learn more about heart valve disease, click here.