Up to 1,000 cyclists are expected to participate in the 24th annual ‘Tour de Lough Corrib Charity Cycle’ in aid of local Heart & Stroke Charity which takes place on Sunday, June 10th 2018.
This year, the annual cycling sportif offers a choice of a choice of a 45km, 80km or 120km route so here is something for all abilities. Since its inception the event has been sponsored by local company Corrib Oil. In recent years, associate sponsorship has been provided by Al Hayes Motors, Tuam; Caragh Precision and Velocity Cycles, Oranmore.
Croí joins European Heart Valve Disease Awareness Day
The initiative to create the first European Heart Valve Disease Awareness Day follows the example of the US, where the first awareness day was introduced on the 22 February 2017 by the Alliance for Aging Research.
The European Heart Valve Disease Awareness Day will be held for the first time on the 8 September 2018 and aims to improve diagnosis, treatment and management of heart valve disease in Europe.
The project is supported by a group of European patient societies including:
The work in order to establish a European Heart Valve Disease Awareness Day is supported by a Steering Group which consists of representatives of patient groups and experts in the field of heart valve disease – full list here.
A recent survey of more than 8,860 adults across Europe found that aortic stenosis is the heart condition people over 60 years old are least familiar with. Only 7% of respondents know what aortic stenosis is – the most common form of heart valve disease. Although awareness increases with age, 30 percent of respondents over the age of 65 say they know nothing about heart valve disease.
Often heart valve disease patients are diagnosed only because they see a health care professional for a regular check-up or for some other issue.
The seriousness of heart valve disease, combined with the fact that the symptoms are often difficult to detect or dismissed as a normal part of ageing, means that this lack of awareness can have troublesome or dangerous consequences.
This is why European Heart Valve Disease Awareness Day is so important, not only to raise awareness of the disease but to also make the population more aware of the symptoms so they can get the help they need at the right time. It is also important that clinicians provide their patients, especially those who are over the age of 65, with regular stethoscope exams as these are the key to detecting the disease.
Please mark September, 2018 in your calendar and get involved in spreading the word about heart valve disease.
For more information about heart valve disease visit the website of Heart Valve Voice.
In Spain, Cardio Alianza has coordinated ‘Heart Failure Week’ with planned events throughout 7 Cities taking place from the 7th to 11th of May as part of the Acting on Heart Failure campaign. Our alliance members in Spain have coordinated the support of the Mayors of Barcelona, Vitoria, Girona, Valladolid, A Coruña, Sevilla and Las Palmas de Gran Canaria. These cities have pledged to host a series of awareness days throughout the week with information booths about Heart Failure and its symptoms and will also include patient education sessions, where patients gain access to cardiologists and nurses to help increase their knowledge and offer advice on managing and controling the condition. These events will showcase the signature theme of red, a visual symbol of the City’s support of Heart Failure.
As part of a broader awareness initiative, Cardio Alianza has engaged more than 2,000 pharmacies who are supporting the campaign by providing informative Heart Failure leaflets and promotional literature to their patrons. Furthermore, they have engaged national and regional media and have been particularly active on social media networks, promoting their #mueveteporlaIC alongside iHHub’s #ActingOnHF2018 hashtag campaigns.
If you want to know more about the campaign and Cardio Alianza’s efforts, you can follow this link that contains the details of the initiative “Muévete por el corazón”:
The Heartbeat Trust takes part in the in the European Campaign ‘Acting on Heart Failure’.
On May 9th Councillor Tom Murphy, An Cathaoirleach of Dún Laoghaire-Rathdown County Council, heart failure patients, carers and their families joined the Heartbeat Trust at St Michael’s Hospital and to launch the ‘Acting on Heart Failure’ European awareness initiative.
They joined Galway, Cork, and another 37 locations across Europe to welcome this patient group-led heart failure awareness campaign. The campaign, running throughout May as the designated European Heart Failure Awareness Month, invites Mayors from across Europe to commit to raising awareness of heart failure and call for local action in their respective cities and towns to improve the lives of those living with the condition. See more at hearbeat-trust.ie
The ‘Acting on Heart Failure’ team at ParSirdi.lv in Latvia will be holding a health screening and awareness event on the 17th of May in Liepāja. The Mayor of Uldis Sesks will open the ceremony where leading cardiologists will offer cardiac screenings and advice on the prevention of cardiovascular disease and Heart Failure. The event will be broadcast on ParSirdi.lv’s Facebook page so be sure to show your support for Latvia’s efforts on Heart Failure awareness by logging in to Facebook on the 17th of May or watching the event on the iHHub website. Also, keep your eye on the iHHub website for updates on the progress of all our European campaigns to raise awareness for Heart Failure.
There are some exciting ‘Acting on Heart Failure’ events on the horizon in Germany! On the 26th of May, Herzschwäche Franken e.V., a Heart Failure support group in Germany, will be leading a Heart Failure Patient Day! The mayor of Nurnberg will address guests at the event and pledge support for Heart Failure.
Four medical experts will then talk to the public and engage in a valuable Q&A session. Having access to Heart Failure experts and hearing from them directly is a fantastic step toward raising public and political awareness of this disease. Have a look at the event flyer and head over to Herzschwäche Franken e.V.’s Facebook page to get all the details of the event. Don’t forget to check back in to this website to see Germany’s progress on the ‘Acting on Heart Failure’ campaign, and to see the activities of the other European countries in raising awareness for Heart Failure.
The ‘Acting on Heart Failure’ campaign is getting very busy with awareness events in Lithuania! On the 4th of May, Širdies Nepakankamu Sergančiųjų Asociacija (ŠNSA), a Heart Failure patient advocacy group in Lithuania, will be holding a mobile Cardiology clinic event! The clinic will offer cardiac screenings to attendees, interactive information on Heart Failure will be provided and attendees will have the opportunity to engage with Heart Failure experts.
As an indication of support for Heart Failure patients, the city of Vilnius will light up the Mindaugas Bridge in the colour red. In another touching display of solidarity, the city of Kaunas will light up the Christ’s Resurrection Church in red for a week. Have a look at the event flyer and head over to ŠNSA’s Facebook page to get all the details of these important events.
Don’t forget to check back in to this website to see Lithuania’s progress on the ‘Acting on Heart Failure’ campaign, and to see the activities of the other European countries in raising awareness for Heart Failure.
GALWAY THE FIRST OF 40 EUROPEAN CITIES TO LAUNCH GLOBAL CAMPAIGN ‘ACTING ON HEART FAILURE’
‘Acting on Heart Failure’ is a patient-group led initiative dedicated to increasing global awareness of heart failure Galway is the first city to launch this European campaign
Mayors from cities across Europe have united behind the International Heart Hub (ihhub) – of which Croí is a founding member– to help raise awareness of heart failure and call for local action to improve the lives of those living with the condition.
It is estimated that 90,000 people live with the condition in Ireland, and up to 60 million people worldwide
The Mayor of Galway City, Cllr Pearce Flannery and the Mayor of County Galway, Cllr Eileen Mannion, (Friday May 4th) joined forces at the Croí Heart & Stroke Centre to be the first City and County in Europe to launch the ‘Acting on Heart Failure’ global awareness initiative. Galway is one of 40 cities across Europe to participate in this global patient-group led heart failure awareness campaign. The month of May is European Heart Failure Awareness Month, and Mayors from across Europe have united with the International Heart Hub (ihhub www.ihhub.org) which is a global alliance of heart failure patient organisations to commit to raising awareness of heart failure and call for local action to improve the lives of those living with the condition. The ‘Acting on Heart Failure’ Campaign in Europe is being co-ordinated by local Heart & Stroke charity Croí.
Heart Failure is a specific and serious heart condition which is debilitating and life-threatening, affecting people of all ages but is most prevalent in the over 60’s, being the most frequent cause of hospitalization in people over the age of 65. It is a condition where the heart cannot pump enough blood around the body because the muscle of the heart becomes too weak or too stiff to work properly. If poorly treated it has a worse prognosis than many forms of cancer. However, with access to timely diagnosis, appropriate medical management and follow-up services, a patient’s prognosis can be significantly improved. Due to Ireland’s ageing population, heart failure is set to increase dramatically, leading to an increase in hospital admissions from heart failure of more than 50% over the next 25 years.
Approximately, 90,000 people in Ireland; 15 million people in Europe and 60 million people worldwide are living with heart failure, many with very poor quality of life due to poor initial recognition of symptoms; poor or late diagnosis; inequity of access to specialist care, including heart failure nurse specialists and low availability of community shared and continued care
Speaking at the launch today in the Croí Heart & Stroke Centre, Croí CEO Neil Johnson said “Croí is delighted to lead this European Initiative. It’s time heart failure patients were heard. We are teaming up with patient organisations across the globe, including the Heartbeat Trust here in Ireland, to join the global newly unified patient voice to call for better services and care. The reason for this European Campaign is that in Ireland and across Europe, Heart Failure has been for too long a forgotten condition in health policy despite its enormous economic impact and the huge burden carried by those living with the condition. Consequently, there are huge challenges which need to be tackled”
Improve public understanding of what Heart Failure is – While the term Heart Failure is very negative and can be very scary – early diagnosis & proper management can give a good quality of life
Help people recognise the symptoms of Heart Failure – Unfortunately, the typical symptoms are often mistaken as normal signs of aging
Help people differentiate Heart Failure from other heart conditions – Less than 5% of the general public know what heart failure is. It is not a heart attack and it’s not a cardiac arrest, and these terms are often used interchangeably without knowing the difference. In simple terms, a heart attack is a ‘plumbing problem’, cardiac arrest is an ‘electrical problem’ and Heart Failure is a ‘pumping problem
Educate people on who can be affected by Heart Failure – People of all ages can develop heart failure, primarily linked to anything that damages the heart muscle eg high blood pressure, heart attack or a virus. Most heart failure is due to heart disease and most frequently occurs in the older years but it’s not just an older person’s disease
Provide support to people with Heart Failure – Because HF is largely a chronic disease, those living with it have huge needs for support and understanding and much needs to be done in this area, particularly in terms of psychological support.
Exciting ‘Acting on Heart Failure’ events on the horizon in Germany! On the 26th of May, Herzschwäche Franken e.V., a Heart Failure support group in Germany, will be leading a Heart Failure Patient Day! The mayor of Nurnberg will address guests at the event and pledge support for Heart Failure.
‘A Night with Mario’ to help beat Heart Disease and Stroke!
Top Irish Comedian and Impressionist Mario Rosenstock will be in Galway next month, for a ‘Night with Mario’ in the Galmont Hotel on Friday March 23rd in aid of local heart & stroke charity Croi.
Mario is best known for his daily ‘gift grub’ appearance on Today FM’s breakfast show with Ian Dempsey. He is coming to Galway for a special performance as part of the new-look Croí Ball which is the longest running Charity Ball in the City, now in its 33rd year. Announcing details of the event, Croí’s Neil Johnson said “We are looking forward to a great night of fun and entertainment, followed by dancing to local band ‘The Bentley Boys’ and disco til late. All funds raised will directly support our ongoing fight against heart disease & stroke”
Pictured at the launch of the black-tie ‘Night with Mario’ which will take place in the Galmont Hotel Galway on Friday March 23rd, photo shows Mario Rosenstock of ‘Gift Grub’ fame with Neil Johnson, Croí.
Tickets for a ‘Night with Mario’ which are limited, are now on sale via the link below or by calling Jessica on 091-544310.
Healthy Ireland, a Government-led initiative, is the national strategy for action to improve the health and well-being of the nation by placing a focus on prevention, individual awareness and keeping people healthy for longer.
Galway Public Libraries is currently delivering a new and exciting programme entitled “Healthy Ireland at Your Library”, that will establish your local library as a valuable source within the community for health information. A range of resources, services and supports to individuals and communities is currently being rolled out in all #Galway libraries and includes:
A comprehensive collection of books on health and well- being.
New e-books, e-audio books and e-magazines will be accessible in every library and by remote access.
Talks, discussions and workshops with a focus on physical health, mental health and health literacy.
This exciting initiative was launched in Ballinasloe Library on Friday 9th February at 1.30. Olympian Catherina McKiernan was the guest speaker.